H-CARE Pilot Survey: Overall Results

H-CARE Pilot Survey: Overall Results

The results of the H-CARE survey (carried out by EURORDIS) show that at European level, access to the expertise of ERN healthcare providers is very beneficial for rare disease patients’ healthcare experience and for their access to diagnosis

The 6-page factsheet presenting the results for eUROGEN and results on survey design is available here. A factsheet presenting those results in 23 languages will be available by the end of October.