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Another Successful ERN Exchange Programme Visit
16 August 2022Sharing Knowledge on Treatment for Children with Anorectal Malformation: A Successful ERN Exchange Programme Group Visit Dr. med. Eberhard Schmiedeke,...
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WHO Endorses Global Network for Rare Diseases
19 July 2022“We at the World Health Organization are on your side,” said Rüdiger Krech, WHO Director of Health Promotion, giving...
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European Conference on Rare Diseases (ECRD) 2022
19 July 2022ECRD2022 was among our most inclusive and sustainably responsible conferences to date! It took place online from 27 June...
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ERICA 2nd General Assembly
19 July 2022The ERICA 2nd General Assembly (a hybrid meeting in Bologna, Italy and online) provided three productive days full of...
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Report: EJP RD Research Mobility Fellowship
13 July 2022by Marija Miletić I took place in an EJP RD Research Mobility Fellowship, which was challenging yet rewarding; an...
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Publish your Horizon-funded research on Open Research Europe
13 July 2022Do you have Horizon 2020 and/or Horizon Europe funding? Beneficiaries are invited to publish their work on Open Research...
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ERN eUROGEN 18-Month Coordination Grant: First Stage of Funding Application Successful!
13 July 2022On 17 May, we received the fantastic news from the EC that we have successfully reached the stage of...
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Survey: Machine Learning for RD Diagnosis
25 May 2022The Screen4Care Project Consortium invites ERN members to complete a short questionnaire (15 minutes) about their understanding, experience and attitudes regarding machine learning (ML)...
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EC Health Programme: Public Consultation
25 May 2022The public consultation is open for the final evaluation of the 3rd health programme (2014-2020). The results will be used to improve...
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RDI & EURORDIS Launch Global Survey
25 May 2022Rare Diseases International has partnered with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis for Persons...