News

ERN eUROGEN’s webinar programme began in 2019 and expanded in 2022 to deliver more sessions. To evaluate our audience’s...

The VII edition of UnoSguardoRaro: Rare Diseases International Film Festival (RDIFF) will shine a spotlight, not on diseases, but...

The final meeting of the Orphanet Data for Rare Disease (OD4RD) project led by Orphanet took place in Paris...

The 24 ERN Coordinators meet regularly with the European Commission (EC) to drive forward the work of the ERNs,...

Following the covid-19 pandemic and two years of online-only meetings, the ERN eUROGEN Coordination Team was delighted to hold an...

Darren Shilhan, ERN eUROGEN Lead IT & Data Performance Analyst, writes: On 1 September 2022, the process to evaluate...

Sharing Knowledge on Treatment for Children with Anorectal Malformation: A Successful ERN Exchange Programme Group Visit Dr. med. Eberhard Schmiedeke,...

“We at the World Health Organization are on your side,” said Rüdiger Krech, WHO Director of Health Promotion, giving...

ECRD2022 was among our most inclusive and sustainably responsible conferences to date! It took place online from 27 June...

The ERICA 2nd General Assembly (a hybrid meeting in Bologna, Italy and online) provided three productive days full of...