News

ERN eUROGEN has just published an outreach article in the leading science communication publication, Scientia. “Improving Outcomes in Patients...

ERN eUROGEN is collaborating with the International Federation for Spina Bifida and Hydrocephalus (IFSBH) and has signed a Memorandum of Understanding with...

ERN eUROGEN held a very successful and well-attended Thematic Session on rare and complex urology at the 38th Annual...

ERN eUROGEN has successfully submitted its information for the 5-year evaluation of the European Reference Networks. This is in...

The ERN eUROGEN Exchange Programme follows and will build upon the successful first exchange programme facilitated by the EC...

CureforU is an online platform which facilitates better cures for people living with rare or complex diseases by enabling...

Patients with spina bifida face many challenges growing up, including urological problems, which significantly impact their quality of life....

ERN eUROGEN’s webinar programme began in 2019 and expanded in 2022 to deliver more sessions. To evaluate our audience’s...

The VII edition of UnoSguardoRaro: Rare Diseases International Film Festival (RDIFF) will shine a spotlight, not on diseases, but...

The final meeting of the Orphanet Data for Rare Disease (OD4RD) project led by Orphanet took place in Paris...