News

The first announcement has been made for the 30th International Conference On Spina Bifida & Hydrocephalus, to be held...

The WHO Global Network for Rare Diseases (GNRD) envisions a world where all persons living with a rare disease...

The European Joint Programme on Rare Diseases is organizing the training webinar: “Real-World data, Machine learning and Deep analytics in...

As part of the training activities proposed by EJP RD, a 3-day training course on “Training on strategies to foster solutions of...

The EURORDIS European Patient Advocacy Group (ePAG) Steering Committee Annual Meeting (virtual, 13 November 2023) reviewed the results of...

In the New Year, as part of the continual ERN evaluation process, ERN eUROGEN’s healthcare providers (HCPs) will be...

An online hands-on paediatric colorectal surgery course will be held from 22-23 February 2024, supported by ERN eUROGEN, ERN...

On 28 November 2023, a meeting of the ERN Managers Working Group for the 24 ERNs took place. The...

Another very successful ERN eUROGEN webinar (kindly supported by the European Society for Pediatric Urology) took place on 6...

An ERN eUROGEN Expert Working Group has been adapting existing Dutch guidelines on anorectal malformations (ARM). We are happy...