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Submitted: 5-year Evaluation of the European Reference Networks
24 March 2023ERN eUROGEN has successfully submitted its information for the 5-year evaluation of the European Reference Networks. This is in...
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New ERN eUROGEN Exchange Programme Launched
1 February 2023The ERN eUROGEN Exchange Programme follows and will build upon the successful first exchange programme facilitated by the EC...
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CureforU: Present or Discuss ARM and Hirschprung’s Cases on Global Online Platform
14 December 2022CureforU is an online platform which facilitates better cures for people living with rare or complex diseases by enabling...
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Joint Work between ERNs eUROGEN & ITHACA on Spinal Dysraphism
14 November 2022Patients with spina bifida face many challenges growing up, including urological problems, which significantly impact their quality of life....
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Positive Feedback for ERN eUROGEN Webinars
14 November 2022ERN eUROGEN’s webinar programme began in 2019 and expanded in 2022 to deliver more sessions. To evaluate our audience’s...
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UnoSguardoRaro: Rare Disease International Film Festival, 10-22 November 2022
8 November 2022The VII edition of UnoSguardoRaro: Rare Diseases International Film Festival (RDIFF) will shine a spotlight, not on diseases, but...
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Orphanet Data for Rare Disease (OD4RD) Final Meeting
8 November 2022The final meeting of the Orphanet Data for Rare Disease (OD4RD) project led by Orphanet took place in Paris...
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ERN CG & BoMS Meetings, 4-5 October 2022
11 October 2022The 24 ERN Coordinators meet regularly with the European Commission (EC) to drive forward the work of the ERNs,...
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ERN eUROGEN Strategic Board Meeting, 2022
10 October 2022Following the covid-19 pandemic and two years of online-only meetings, the ERN eUROGEN Coordination Team was delighted to hold an...
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AMEQUIS: 2022 ERN Evaluation Process Starts Soon
16 August 2022Darren Shilhan, ERN eUROGEN Lead IT & Data Performance Analyst, writes: On 1 September 2022, the process to evaluate...
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