Bladder exstrophy is a congenital abnormality in which the bladder is exposed outside of the body, as the pelvic bones and muscles that usually support it do not properly form. This can lead to a variety of associated anomalies, including problems with bladder function and urination, as well as genital and reproductive abnormalities. Bladder exstrophy is a complex condition that may require multiple surgeries and a team approach for comprehensive care. You can find out which of our Healthcare Providers have expertise in this area on our Workstreams & Expertise page. She was responsible for the paediatric urology team in Gothenburg for many years before moving to Stockholm in 2019 when Stockholm became the Swedish national centre for bladder exstrophy. Her research and publications are mainly about posterior urethral valves and differences in sex development (DSD), including hypospadias and bladder exstrophy. ERN eUROGEN and the DGU are working on developing a guideline on bladder exstrophy/epispadias complex. When completed, this will be available from our guidelines page. ERN eUROGEN has developed patient information on bladder exstrophy, which is available from our patient information page. The Association for the Bladder Exstrophy Community (aBEc) is an international support network for patients and families living with bladder exstrophy.Bladder Exstrophy/Epispadias (ERN eUROGEN EA 1.2)
Expertise Area Coordinator: Alaa El Ghoneimi
Vice-EAC: Gundela Holmdahl
Gundela Holmdahl is Section Chief of Paediatric Urology at the Karolinska University Hospital, Stockholm, Sweden, a Senior Consultant in Paediatric Urology, an Associate Professor, a Fellow of the European Academy of Paediatric Urology (FEAPU), and a member of the ESPU board.Guidelines
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