ERN Evaluation Results Report
The recently published “ERN Evaluation Results Report – Independent Evaluations of European Reference Networks and of Healthcare Providers” highlights the major achievements and future potential of European Reference Networks (ERNs) after their first five years of operation.
The report provides a comprehensive overview of the ERN system’s role in addressing rare and complex conditions across Europe. It summarizes data from 24 ERNs and 836 healthcare providers (HCPs) in 24 EU Member States and Norway, gathered through a thorough evaluation process. This included self-assessments, document reviews, ERN interviews, on-site audits, and stakeholder consultations.
By drawing on this wide range of inputs, the report underscores the ERN system’s essential contributions to improving the diagnosis, treatment, and care of rare diseases. It offers insights into the system’s structure, maturity, activities, and impact while identifying areas for growth.
Crucially, the findings pinpoint opportunities for enhancing evaluation processes and ensuring the sustainability of the ERN framework. The report emphasizes the need for targeted improvements to strengthen the network’s capacity and maintain its success in meeting the needs of patients with rare and complex conditions across Europe.
This pivotal document serves as both a reflection on the ERN system’s achievements and a roadmap for its continued evolution and growth.
#EUHPP Live Webinar
On 4 December 2024, the EU Health Policy Platform (#EUHPP) hosted the live webinar “European Reference Network Evaluation: The Way Forward.” This insightful event brought together key stakeholders to discuss the findings and implications of the European Reference Network (ERN) evaluation, setting the stage for future developments. If you missed the webinar or would like to revisit the discussions, you can watch the recording until 14 December 2024 using the password: @HPP_webinar2024
If you would like access to the webinar presentations and more in-depth resources on this critical topic, the EU Health Policy Platform offers a comprehensive repository of information related to the webinar. As a member, you’ll gain access to:
- Webinar presentations: Download and review the materials presented during the webinar.
- Agora network: Promote your activities and engage with other members in the Platform’s shared space.
- Latest updates: Stay informed about public health news and events with bi-weekly e-newsletters.
- Network collaboration: Join networks focused on diverse health fields and connect with like-minded professionals.
Registration is free and easy! Simply click here to sign up and start engaging with this vibrant community.
