The countdown is underway for Rare Disease Day 2024, an annual event organized by EURORDIS on the last day of February. This significant day provides a crucial platform for the 300 million individuals worldwide living with rare diseases to share their stories and amplify their voices.
On 29 February 2024, diverse groups across the globe will host events, bringing local rare disease communities together to raise awareness about their common challenges. To discover more about Rare Disease Day and find events near you, visit the website in your local language.
In preparation for the upcoming day, people worldwide were invited to contribute their stories, which have been artfully compiled into a video showcasing the rich diversity of the rare disease community. Accessible in over 60 languages, the video is accessible both below and on Rare Disease Day’s official website.
EURORDIS has additionally announced that the 2024 Black Pearl Awards will take place in Brussels and in a hybrid format on 20 February 2024. Registration to attend is now open, featuring early bird prices until 15 January.
Submissions are now open for the 2024 Black Pearl Awards’ Photo Award. This award is a unique chance for people of all nationalities, ages and diseases to visually express what it means to live with a rare disease and to share their stories with the rare disease community and beyond. All approved submissions will appear in the virtual Gallery, with public voting on the finalists taking place from 7 February 2024. The winner will be announced on 20 February, the day of the Awards.
