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The European Joint co-fund Programme for Rare Diseases (EJP-RD) approved
3 October 2018Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To...
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INNOVCare Project: Results demonstrate need for integrated care for rare disease patients
20 September 2018The results of the INNOVCare Project (Innovative Patient-Centred Approach for Social Care Provision to Complex Conditions) were announced at...
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ePAG Steering Committee
20 September 2018From 13-14 September, the ePAG Steering Committee met in Brussels, with Dalia Aminoff and Serena Bartezzati representing eUROGEN. Birute...
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EU Funding News
17 July 2018New call for proposals A new call for ERNs to apply to the Connecting European Facilities Fund (CEF) was...
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Genetic Alliance UK Event, Houses of Parliament, London
17 July 2018Genetic Alliance UK (the national charity alliance of over 200 patient organisations working to improve the lives of patients...
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ERN Coordinators Group (ERN CG) Meeting, Brussels
17 July 2018Prof Wout Feitz (WS1 Lead) (NL) and Michelle Battye (Manager) (UK) represented eUROGEN at the ERN CG meeting on...
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2nd Annual eUROGEN Strategic Board Meeting, Noordwijk
17 July 2018We held our 2nd Annual Strategic Board meeting in Noordwijk from 11-12 June 2018, with 43 attendees representing our...
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ERN eUROGEN: Improving lives for patients with rare diseases
18 March 2018The European Reference Network (ERN) eUROGEN is already the most proactive of the 24 ERNs approved and funded by...
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EU Commissioner Vytenis Andriukaitis on eUROGEN
16 March 2018Prof Chris Chapple introduces EU Commissioner Vytenis Andriukaitis at the EAU18 opening ceremony, after a dynamic performance by the...
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One quarter of penis cancer sufferers don’t get recommended treatment – halving the survival rate
15 March 2018A major international survey has found that around a quarter of patients are not receiving the recommended treatment for...
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