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4th Conference on European Reference Networks – The Patient View
13 December 2018Serena Bartezzati (eUROGEN EPAG representative) attended the conference in Brussels from 21-22 November and has kindly provided us with...
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4th ERN Conference – Brussels, 21 & 22 November 2018
28 November 2018Health professionals, researchers, patient organisations and policymakers gathered in Brussels on 21 & 22 November for the 4th European Reference...
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International Children’s Continence Society (ICCS) 2018 Annual Meeting
31 October 2018The International Children’s Continence Society (ICCS) 2018 Annual Meeting was held in Rome from 26-29 September and covered almost...
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The European Joint co-fund Programme for Rare Diseases (EJP-RD) approved
3 October 2018Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To...
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INNOVCare Project: Results demonstrate need for integrated care for rare disease patients
20 September 2018The results of the INNOVCare Project (Innovative Patient-Centred Approach for Social Care Provision to Complex Conditions) were announced at...
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ePAG Steering Committee
20 September 2018From 13-14 September, the ePAG Steering Committee met in Brussels, with Dalia Aminoff and Serena Bartezzati representing eUROGEN. Birute...
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EU Funding News
17 July 2018New call for proposals A new call for ERNs to apply to the Connecting European Facilities Fund (CEF) was...
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Genetic Alliance UK Event, Houses of Parliament, London
17 July 2018Genetic Alliance UK (the national charity alliance of over 200 patient organisations working to improve the lives of patients...
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ERN Coordinators Group (ERN CG) Meeting, Brussels
17 July 2018Prof Wout Feitz (WS1 Lead) (NL) and Michelle Battye (Manager) (UK) represented eUROGEN at the ERN CG meeting on...
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2nd Annual eUROGEN Strategic Board Meeting, Noordwijk
17 July 2018We held our 2nd Annual Strategic Board meeting in Noordwijk from 11-12 June 2018, with 43 attendees representing our...
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