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Paediatric Colorectal Course: 18-19 June 2021
14 May 2021On the 18-19 June 2021 a paediatric colorectal course will take place virtually and in person in Nijmegen, NL...
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Article Published – Rare and Complex Urology: Clinical Overview of ERN eUROGEN
19 March 2021ERN eUROGEN, the European Reference Network for rare urorectogenital diseases and complex conditions needing highly specialised surgery, is very...
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Open Call for Research Mobility Fellowships
16 March 2021The EJP RD Research Mobility Fellowships funding opportunity is now open! The call aims to support PhD students, Postdocs and medical...
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Rare 2030 Final Virtual Conference
11 March 2021At their final virtual conference on 23 February, the Rare 2030 project launched the final report of the project:...
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UK: Brexit, Horizon Europe & Rare Diseases Framework
4 February 2021The UK withdrawal from the EU took effect on 1 January and six UK healthcare providers have thus ceased...
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Training Programme in Intensive Care Skills
21 December 2020In its aim to support EU healthcare systems and clinicians at the frontline dealing with the COVID-19 pandemic, the...
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Brexit – UK clinicians Warn of No-Deal Consequences for Patients
21 December 2020In an open letter published in The Lancet, Marc Tischkowitz, Beverley Power, Graham Slater and 70 additional cosignatories have...
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EURORDIS Black Pearl Awards
21 December 2020The tenth anniversary special online edition of the EURORDIS Black Pearl Awards will take place during the evening of...
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ECRD Meeting – Executive Summary & Special Supplement
21 December 2020The Executive Summary from the 10th European Conference on Rare Diseases and Orphan Products (held 14-15 May 2020) is...
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The ERICA Project: ERNs Joining Forces on Research and Innovation
21 December 2020The European Rare Disease Research Coordination and Support Action (ERICA) Project received a positive evaluation for an H2020 grant...