Rare Retroperitoneal Diseases and Conditions

EA 2.4 Rare Retroperitoneal Diseases and Conditions

Retroperitoneal diseases and conditions refer to those that affect the organs and structures located behind the peritoneum, which is the membrane that lines the abdominal cavity. Rare retroperitoneal diseases and conditions are those that are not commonly found in this area and may affect various structures, such as blood vessels, nerves, lymph nodes, or connective tissues.

Expertise Area Coordinator and Vice-EAC

Expertise Area Coordinator:

Victor Schüttfort

Vice-EAC:

vacant

Conditions and Codes

Obstructive and reflex uropathy: ICD-10 Code N13
IgG4-related retroperitoneal fibrosis: ORPHAcode 49041
Familial vesicoureteral reflux: ORPHAcode 289365

Healthcare Providers

BE Antwerp UZ, BE Leuven UZ, DE Hamburg-Eppendorf UK, ES Madrid La Paz, ES Barcelona Fundació Puigvert, IT Padua AOU, IT Rome Gemelli

Additional Resources

Retroperitoneal fibrosis. Disease InfoSearch page and Genetic and Rare Diseases Information Center page.
Retroperitoneal Fibrosis World Support. Offers both a warm and comforting welcome and an unrivalled learning experience to build self-awareness of RF. They welcome all patients, caregivers, family, friends, and interested medical professionals. This forum is for each member to offer others moral support, friendship, and opinions and advice based on our personal experiences with RF.
Vesicoureteral reflux. Disease InfoSearch page.