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DeCODe Orphan and Paediatric Medical Device Project Launched
13 September 2024The EC-funded DeCODe consortium held its kick-off meeting in Brussels on 9-10 September 2024. ERN eUROGEN is proud to...
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EAU’s “An Urge To Act” Campaign Tackles Incontinence
10 September 2024ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions, proudly supports the European Association of...
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World Health Assembly Resolution on Rare Diseases Webinar
10 September 2024ERN eUROGEN joined the recent public webinar, *Towards a WHA Resolution on Rare Diseases 2025*, held on 30 August...
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ERN eUROGEN Results: Newborn Screening Survey
12 July 2024Last year, Rare Barometer asked ERN eUROGEN to assist with their Newborn Screening (NBS) Survey by providing a validated...
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EJP RD Publication: Building the Rare Diseases Research Ecosystem
4 July 2024We are pleased to share the publication of a new article highlighting the past five years of the European...
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ECRD 2024: ERN eUROGEN Involved Regarding Highly Specialised Care
14 June 2024Prof Ivo de Blaauw, ERN eUROGEN Sub-Coordinator, spoke in the session “Achieving Full Reach: Overcoming The Last Challenges To...
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ERN Coordinators Group Meeting, Luxembourg – 21 May 2024
14 June 2024The 20th meeting of the ERN 24 Coordinators with the European Commission’s DG SANTE team was held in person...
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ERN eUROGEN Transition: Welcome to New Coordinators
14 June 2024Due to Prof. Wout Feitz’s retirement on 8 May 2024, it became necessary to identify a new Coordinator for...
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New Version of Clinical Patient Management System Released
14 June 2024The new desktop version of the Clinical Patient Management System, CPMS 2.0, was released on 31 May 2024, with...
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Patient Involvement in Guidelines Development Handbook
12 June 2024An ERN Guideline Programme handbook on “Patients’ involvement in the development of Clinical Practice Guidelines (CPGs) and Clinical Decision...
