Author archive for Jen Tidman

The European Commission is funding an exchange programme to stimulate knowledge sharing and collaboration between healthcare professionals in the...

EURORDIS have published their vision for a mature ERN system that leaves no person living with a rare disease...

The ERN Coordinators Group (ERN CG) met with the European Commission on 27 November 2020 with a very full...

The EJP RD internal call for innovation projects in clinical trials methodologies in limited populations opened on 7 December 2020...

The first meeting regarding the European Comission’s ‘ERN Capacity & Knowledge Sharing Through Short Term Mobility & Exchanges of...

The 8th meeting of the European Reference Networks IT Advisory Group was held on 8 October and attended by Darren...

There is still no clear picture of how UK healthcare providers, clinical experts and patient organisations involved in the...

The first internal meeting of the ERN Coordinators Group (CG) took place on 4 November and was attended by...

The CEF 2020 proposal written by the ERN eUROGEN Coordination Team was successfully submitted on 3 November. This application is for funding earmarked for ERNs, so...

The results of the H-CARE survey (carried out by EURORDIS) show that at European level, access to the expertise...