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Shaping the Future: Towards an EU Action Plan on Rare Diseases
24 April 2025On 10 April 2025, the European Economic and Social Committee (EESC), the Polish Ministry of Health, and the Medical...
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DeCODe Workshop: Advancing Paediatric Device Development
24 April 2025On 8–9 April 2025, the DeCODe consortium convened a focused workshop in Brussels, bringing together key stakeholders to advance...
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Patient Empowerment: A Journey from Isolation to Advocacy
4 April 2025Together, We Are Stronger: Empowering Adults with Rare Conditions By adapting work by patient representatives from TOFS, Max’s Trust,...
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Rare Barometer Survey: Impact of Rare Uro-Recto-Genital Diseases
27 March 2025The findings of the latest Rare Barometer survey shed light on the real-life challenges faced by people living with...
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Session on Rare and Complex Urology at EAU25
27 March 2025On Friday, 21 March, ERN eUROGEN hosted a dedicated Thematic Session at the annual European Association of Urology congress...
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ERN eUROGEN Book – Rare & Complex Urology
22 March 2025On Rare Disease Day 2024, ERN eUROGEN, the European Reference Network (ERN) for rare uro-recto-genital diseases and complex conditions,...
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Expert Meeting on Vaginal Replacement in ARM
17 March 2025We are pleased to announce that the Expert Meeting on Vaginal Replacement in Children with ARM will take place...
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Celebrating Rare Disease Day 2025
28 February 2025Today, 28 February 2025, we join the global rare disease community in celebrating Rare Disease Day, a vital occasion to...
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World Orphan Drug Congress Europe, 27-29 October
13 February 2025ERN eUROGEN is an official supporting partner of the World Orphan Drug Congress Europe, the largest and most established...
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New Clinical Practice Guidelines for Spinal Dysraphism
12 February 2025ERN eUROGEN, the European Reference Network for Rare and Complex Uro-Recto-Genital Diseases and Conditions, is proud to highlight the...
