Cross-ERN actions

Cross-ERN Actions

The members of eUROGEN currently collaborate with the following European Reference Networks:

    The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) covers rare inherited and congenital digestive disorders, including gastro-intestinal disorders, which have in common early manifestation in life and the need for multidisciplinary care and long-term follow-up.
  • ERKNet 
    ERKNet is the European Reference Network for Rare Kidney Diseases, a consortium of 38 expert pediatric and adult nephrology centres in 12 European countries providing healthcare to more than 40,000 patients with rare disorders of the kidneys.
  • Endo-ERN
    The European Reference Network on rare endocrine conditions (Endo-ERN) aims to improve access to high-quality healthcare for patients with hormonal disorders. Endocrine conditions are often complex and require a long period of care due to chronic disease without being life-threatening.
    The ITHACA ERN brings together experts in rare congenital malformations and rare intellectual disability disorders.