Development of clinical guidelines for rare and complex urogenital diseases There is currently a lack of evidence-based, unbiased information on the different urogenital rare diseases. For healthcare professionals, eUROGEN will replicate and standardize best practice methodology, which will lead to improvements in the quality and effectiveness of care. eUROGEN aims to translate the clinical guidelines into information for patients in a clear and understandable way. Clinical Practice Guidelines (CPG) and Clinical Decision Support Tools (CDST) Programme A consortium of Health Technology Assessment (HTA) agencies plus other academic institutions with experience in the development of CPG and CDST and training and eLearning activities (called the Contractor henceforth) has been selected by the European Commission (EC) to assist the ERNs and their healthcare providers in this programme. The contract for the process of development, appraisal and implementation of CPGs and CDSTs is based on the terms of reference which can be found here. On 6 February 2020, a workshop was organised by the EC in Brussels with the participation of all ERNs representatives and the Contractor to present and discuss the goals, timeline and actions foreseen in the CPG and CDST Programme including information on the Consortium. The technical assistance that the Contractor will provide aims to build the capacity of the ERNs and their members to produce and adhere to high-quality CPGs and CDSTs in their respective areas of expertise. Please note that it is expected that the dates will be extended due to the coronavirus pandemic. ERN eUROGEN plans The disease areas agreed by the ERN eUROGEN Strategic Board at their annual meeting in June 2019 for guidelines work are: Full Clinical Practice Guidelines (CPGs) in areas where none currently exist; Clinical Decision Support Making Tools (CDSTs): Collaborations with other ERNs: Next stepsClinical Guidelines
Date (2020)
WP
Comm Channel
Objective
February-March
WP-B
E-mail /EU Survey
Consultation on CPGs and CDSTs Methodologies and Tools
February-March
WP-C
E-mail/EU Survey + videoconference
Consultation on CPGs and CDSTs training needs
February-March
WP-A
E-mail
Consultation on existing technical and/or scientific expert panels involved in the development, appraisal and implementation of CPGs and CDSTs.
May
WP-D
E-mail/ EU Survey
Consultation on the goals, planning and intended timetable for the development and appraisal of CPGs and CDSTs
May-October
WP-A
E-mail + videoconference
Consultation on the Expert Panels creation
July
WP-C
E-mail
Consultation on the Physical Training Courses attendance
September
WP-C
E-mail + phone call
Confirmation for Physical Training Courses attendance
October
WP-C
Face-to-face
Face-to-face Training Courses (Brussels)
We are awaiting the guidelines development protocols from the Guidelines Consortium.