In light of the COVID-19 situation, the European Association of Urology (EAU) Guidelines Office has set up a Rapid Reaction Group (GORRG) to provide rapid guidance underpinned by the best knowledge available. The... The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event. ECRD 2020 will take place uniquely online from 14-15 May. Registration IS OPEN until... The call for new members to apply to the existing European Reference Networks was opened in 2019 and the review and assessment of the received applications are ongoing. However,... On Tuesday the 14th April at 18:00 CEST, we will be continuing our series of eUROGEN webinars with a presentation by Prof. Margit Fisch and Dr. Tim Ludwig from... The Withdrawal Agreement as agreed between the parties in October 2019 entered into force on 1 February 2020, with the following implications: UK healthcare providers can continue participating in... In a meeting held in Brussels on 6 February 2020, the European Commission (EC) introduced a new project to provide technical assistance to the ERNs for the development, appraisal... Patients, healthcare providers, charities, representation groups and more collaborated to raise awareness of rare diseases on Saturday 29 February as part of the annual Rare Disease Day event,... The eUROGEN Coordination Team are actively working with the European Commission to agree the Grant Agreement to set up the eUROGEN patient registry (our submitted proposal is on the... In the call opened by the EC in 2019, ERN eUROGEN received a total of 31 new applications to join the network as full members. The ERNs are required...Latest News
EAU COVID-19 Rapid Reaction Recommendations
Poster accepted for European Conference on Rare Diseases & Orphan Products
ERN Expansion Postponed due to COVID-19 Crisis
Complex urethral reconstruction in males with case presentations
Brexit: Withdrawal Agreement and ERNs
Clinical Guidelines – Spanish Consortium to Help ERNs Deliver
World Rare Disease Day – 29 February
Establishing the ERN eUROGEN Patient Registry
ERN eUROGEN Enlargement – 31 New Applications
