News & publications

  • Affiliated Partners Update

    As reported previously, the Board of Member States for ERNs (BoMS) has begun the process of designating institutions in their countries as Affiliated Partners to work with ERNs. eUROGEN has now received designations from Latvia, Austria and Spain and...

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    eUROGEN
  • Working Group on Knowledge Generation: Training and Education Subgroup

    Jorgen Thorup attended the meeting of the ERN Working Group on Knowledge Generation’s working subgroup on Training and Education on behalf of eUROGEN. The aim of this meeting, on 18 February in Brussels, was to exchange information on the...

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    eUROGEN
  • eUROGEN in action…

    In January, the collaborative work of the healthcare providers in Workstream 2 of ERN eUROGEN led to the delivery of the best available care for two complex cases of acquired female urogenital tract abnormalities.  The patients were referred by...

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    eUROGEN
  • Affiliated Partners

    In 2019 the Board of Member States for ERNs (BoMS), which is mostly comprised of representatives from the health ministries of the Member States, has begun the process of designating institutions in their countries as Affiliated Partners to work...

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    eUROGEN
  • How I Learned to Stop Worrying and Love CPMS

    In case you didn’t know (and if you don’t, where have you been?), the Clinical Patient Management System (CPMS) is the IT Platform designed to facilitate clinical consultations between ERN Members. We in eUROGEN, along with other ERNs, want...

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    eUROGEN
  • eUROGEN at the EAU Annual Congress

    eUROGEN is gearing up for the annual European Association of Urology (EAU) Annual Congress in Barcelona (15-19 March) where some 15,000 urologists and other stakeholders will gather for the second biggest urological congress in the world. Prof Christopher Chapple,...

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    eUROGEN
  • New eUROGEN Office Member – Lead IT and Data Performance Analyst

    At the start of November, we welcomed Darren Shilhan, our new Lead IT and Data Performance Analyst, to the eUROGEN office team.  Darren has written a beautiful introduction to himself, which you can read on the eUROGEN website. “As...

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    eUROGEN
  • 4th Conference on European Reference Networks – The Patient View

    Serena Bartezzati (eUROGEN EPAG representative) attended the conference in Brussels from 21-22 November and has kindly provided us with a patient’s perspective both on the meeting and on the progress of the ERNs to-date. “The ERN conference held from...

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    eUROGEN
  • 4th ERN Conference – Brussels, 21 & 22 November 2018

    Health professionals, researchers, patient organisations and policymakers gathered in Brussels on 21 & 22 November for the 4th European Reference Networks Conference. The well-attended and lively event featured two full days of presentations and debate, driven by plenary sessions and eight...

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    eUROGEN