In January, the collaborative work of the healthcare providers in Workstream 2 of ERN eUROGEN led to the delivery of the best available care for two complex cases of acquired female urogenital tract abnormalities.  The patients were referred by...

In 2019 the Board of Member States for ERNs (BoMS), which is mostly comprised of representatives from the health ministries of the Member States, has begun the process of designating institutions in their countries as Affiliated Partners to work...

In case you didn’t know (and if you don’t, where have you been?), the Clinical Patient Management System (CPMS) is the IT Platform designed to facilitate clinical consultations between ERN Members. We in eUROGEN, along with other ERNs, want...

eUROGEN is gearing up for the annual European Association of Urology (EAU) Annual Congress in Barcelona (15-19 March) where some 15,000 urologists and other stakeholders will gather for the second biggest urological congress in the world. Prof Christopher Chapple,...

At the start of November, we welcomed Darren Shilhan, our new Lead IT and Data Performance Analyst, to the eUROGEN office team.  Darren has written a beautiful introduction to himself, which you can read on the eUROGEN website. “As...

Serena Bartezzati (eUROGEN EPAG representative) attended the conference in Brussels from 21-22 November and has kindly provided us with a patient’s perspective both on the meeting and on the progress of the ERNs to-date. “The ERN conference held from...

Health professionals, researchers, patient organisations and policymakers gathered in Brussels on 21 & 22 November for the 4th European Reference Networks Conference. The well-attended and lively event featured two full days of presentations and debate, driven by plenary sessions and eight...

The International Children’s Continence Society (ICCS) 2018 Annual Meeting was held in Rome from 26-29 September and covered almost all areas relevant to the pediatric urinary tract and its malfunction.  Wout Feitz (Workstream 3 Lead) and Serena Bartezzati (EPAG...

Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To take rare disease collaborative research in Europe to the next level and support achievement of the IRDiRC 2027 goals, the...