How to refer a patient to eUROGEN?

  • Your healthcare provider must be located in an EU or EEA Member State.
  • The patient must have a rare urogenital disease or complex condition that falls within the scope of our ERN – please check a list of the disease areas we cover.
  • You should ask for advice also from your national contact point on the Board of Member States for ERNs about the referral process into the ERNs – you can find their contact details here.
  • Please contact Michelle Battye, eUROGEN Centre Manager if you have a case that you would like to refer to eUROGEN and she will be happy to provide further advice
  • If your referral is accepted by eUROGEN, you must be willing to obtain full informed consent from the patient to share their data using the Clinical Patient Management System (CPMS), then we can grant you a guest user account for a short time period to access the system.
  • You must be willing to invest some time to upload the patients’ medical information, including any relevant imaging into CPMS in order for their case to be discussed by our panel of experts
  • You will receive an ERN Outcome Report document from our panel of experts with highly specialised advice on diagnosis or treatment of the patient concerned, based upon the latest current available scientific knowledge.
  • You understand that eUROGEN can only provide expert highly specialised multi-disciplinary advice – all legal liability and responsibility for the patient rests, as it has always done, with the clinician and healthcare provider treating the patient where the patient lives.