ERN eUROGEN Strategic Board Meeting 2020 – 12 June 2020

ERN eUROGEN Strategic Board Meeting 2020 – 12 June 2020

We look forward to welcoming representatives from our Full Member / Affiliated Partner Healthcare Providers, our ERN Patient Advocacy Groups, and our Supporting Partners to our virtual Strategic Board Meeting on Friday 12 June 2020 from 08:00-18:00 CEST (07:00-17:00 BST).

We have emailed details on how to join the WebEx meeting.  If you believe you should have received these and have not, then please contact us.

FINAL AGENDA:

08.00 – 08.30: Introduction & Overview – Wout Feitz, ERN eUROGEN

08.30 – 09.00: Management & Enlargement of the Network – Michelle Battye, ERN eUROGEN

09.00 – 09.30: Discussion and Q&A

09.30 – 10.00: Working Group on Monitoring & Next Steps – Enrique Terol, DG SANTE, EC

10.00 – 10.30: Discussion and Q&A

10.30 – 10.45: Coffee break

10.45 – 11.15: ePAG update – TBC

11.15 – 11.45: Discussion and Q&A with patient representatives

11.45 – 12.30: Agreeing eUROGEN outcome indicators

12.30 – 13.30: Lunch break

13.30 – 14.00: Can we contribute to a constructive dialogue between different DSD patient groups, healthcare professionals and other parties involved in DSD? – Katja Wolffenbuttel, Erasmus MC

14.00 – 14.30: Discussion and Q&A

14.30 – 14.45: Coffee break

14.45 – 15.15: Recent updates to CPMS – Bart Verlinden, DG SANTE EC and Alan Comer, OpenApp

15.15 – 15.30: Discussions and Q&A

15.30 – 15.45: Media & Communications – Jen Tidman, ERN eUROGEN

15.45 – 16.00: Coffee break

16.00 – 16.20: Results of the H-CARE pilot survey – Jessie Dubief, EURORDIS

16.20 – 16.30: Discussions and Q&A

16.30 – 17.30: Strategic Board voting and discussion

17.30 – 18.00: Wrap up – Wout Feitz, ERN eUROGEN

18.00: Meeting closes