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EJP RD: Free Online Courses on Rare Diseases
9 October 2023Two free Massive Open Online Courses (MOOCs) for individuals with a keen interest in rare diseases research are currently available...
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ERN eUROGEN Differences of Sex Development Information Video
6 October 2023ERN eUROGEN has produced the video below (in cooperation with Erasmus MC and funded by the European Union) to...
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Open Letter: EU – Please Stand By The ERNs
4 October 2023ERN eUROGEN has co-signed an open letter in which the ERN Network Coordinators and people living with a rare...
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ERN eUROGEN Registry Patient Information Video
29 September 2023ERN eUROGEN has produced the video below explaining the concept of the ERN eUROGEN registry for patients. We hope this...
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EU Continence Health Summit & Manifesto: ERN eUROGEN on Panel
28 September 2023The first EU Continence Health Summit is taking place on 8 November in Brussels (BE), with stakeholders coming together...
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Application for 2023-2027 Funding Resubmitted
27 September 2023ERN eUROGEN, the European Reference Network (ERN) for rare urogenital diseases and complex conditions, has successfully resubmitted its application...
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In Memoriam: Linda Cardozo, Former ERN eUROGEN Representative
25 September 2023ERN eUROGEN was very saddened to hear the news of the passing of Professor Linda Cardozo OBE. On behalf...
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New Video for Penile Cancer Awareness Day 2023
20 September 2023On International Penile Cancer Awareness Day, we are proud to launch “Ignore It”, a quirky, unconventional video to raise...
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Save The Date: European Paediatric Colorectal Meeting 2023
18 September 2023The 14th annual European Paediatric Colorectal and Pelvic Reconstruction Meeting will be held in Milan (IT) from 25-27 October...
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ERN eUROGEN on EURORDIS ERNs on Air Podcast
7 September 2023The EURORDIS Rare on Air podcast explores the unique experiences, challenges and successes of people from the rare disease...